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World Down Syndrome Day 2010 – in Brazil
 
Dear all,

I hope you all have had a good WDSD!

The new website is very good and informative. Congratulations!

Our celebration in Brazil was intense. The press helped us spread the word and nearly everyone now knows there is a WDSD.

The main event was an emotional session at hour House of Representatives. I translated the story and posted on the link below.

http://www.inclusive.org.br/?p=14785

There is also a video, with interviews with each one of the self-advocates present to the ceremony. As soon as I have the time, I will translate it , too.

http://www.inclusive.org.br/?p=14810

Best regards,
Patricia Almeida

 
http://www.inclusive.org.br/?p=14276

THEME: SOCIAL INCLUSION: LET’S MAKE IT HAPPEN

On March 21st we celebrate World Down Syndrome Day.

Last year, with the theme “Inclusion for autonomy”, Brazilian Federation of Down Syndrome Associations from many cities promoted more than 100 events
- Hide quoted text -

Public hearings, solemn sessions at Representative Houses, seminars, simposiums and walks, marked the week and gave persons with Down syndrome visibility in society.

Our struggle for human rights for persons with disabilities come from long ago and this year we will once more count on partnership with organizations of persons with and without disability.

The time is now. Social Inclusion: Let’s Make it Happen!
Let’s make it happen since birth!
Let’s make it happen in education!
Let’s make it happen in every sphere, sectors and spaces!
Let’s make inclusion in society happen for all!
Let’s together spread the word and engage society!
Together we are strong!

Claudia Grabois

President

INTERNATIONAL CAMPAIGN – No more abuse! Spread the word and show it in your face that It’s Normal to be Different

http://www.inclusive.org.br/?p=14234

On 3/21, World Down Syndrome Day, a campaign to fight discrimination gives an answer to attacks on persons with Down syndrome on the internet

Lately, persons with Down syndrome have been the target of attacks on the internet from those who don’t’ respect diversity and human rights.

This 3/21, World Down Syndrome Day, Brazil gives a committed and upbeat response to those few intolerant that have been using social web-networks like Facebook, Orkut and YouTube to show their rage.

By accessing the website It´s Normal to be Different , the internet user is invited to take a picture that, through a digital tool, transforms his image to look like a person with Down syndrome.

Doing that, he assumes that It’s Normal to be Different and shows his support against any kind of discrimination, and can promote it within their friends on social networks.

Created by PR agency Giovanni + DraftFCB, this virtual petition has already received thousands of “face-signatures”, and won 2 national and one international publicity awards.

MetaSocial Institute, that promotes the campaign, says that the best defense is to attack back: “many are taking pictures of persons with Down syndrome out of the web because of fear. We pledge the contrary – let’s show our faces, making society realize that everyone has the same rights. Those who have these appalling and sickened actions are a minority, but cannot go unpunished”, says MetaSocial Coordinator, Helena Werneck.

Abusive actions like these happen in any part of the world, with anyone considered “different”.

Two cases that took place in Italy came up the last couple of weeks and had international repercussion. Three Google executives were considered guilty because of a video showing a young man with Down syndrome being humiliated on YouTube, and on Facebook, a site that called for persons with Down syndrome to be used for target practice was shut down.

“With Google executives’ condemnation, certainly there will be more control over abuses like those. But it is vital that we take legal action against this kind of violence, virtual or not. The law is on our side”.

Change the face of prejudice and say NO to abuse

Show it in your face that It’s Normal to be Different

Presentation video, in English with Portuguese subtitles:

http://www.itsnormaltobedifferent.com/pt/index.php?option=com_content&view=article&id=47&Itemid=54

Launch video in NYC, sep/2009:

http://www.youtube.com/user/HelenaWerneck

MetaSocial Institute

www.metasocial.org.br

POLL – How is inclusive education doing?

On the ocasion of World Down Syndrome Day, Inclusive, Inclusion and Citizenship, promotes an informal research regarding the obstacles to inclusive education to subsidize educational publications and the media about relatives, professionals and general public views.

To participate, access the link below.

http://www.inclusive.org.br/?page_id=14258

EVENTS:

DF
Brasilia-DF
1) 6/4 – 10 am – Federal House of Representatives – Solemn session – Social inclusion: Let´s make it happen!

Deputy Federal Paulo Pimenta and Brazilian Federation of Associations of Down Syndrome

2) 15 to 26/3 – Federal Senate – Exhibition “Respect Syndrome is on” – Olga Kos Institute for Social Inclusion, 40 artists with Down syndrome

3) 23/3 – Legislative Assembly of Federal District

Solemn session in honor of World Down Syndrome Day – Iniciative – Deputy Erika Kokay

RJ
Rio de Janeiro – RJ

4) 21/3 – 9:30 am – Ipanema Beach

Walk on the Seaside – Social Inclusion: Let´s make it happen! – RJDOWN and FBASD

5) 23/3 – 2 pm – Solemne session at Municipal Chamber – Social Inclusion: Let´s make it happen – Representative Tio Carlos, FBASD and MetaSocial Institute

6) 24/3 – 2 pm – UERJ-Rav 112 – Inclusive Education Forum in honour of World Down Syndrome Day

Duque de Caxias – RJ

7) 23/3 – Ceremony at Municipal Secretary in honour of FBASD – Dwn Syndrome Federation

SP
São Paulo, SP

8) International Symposium on Down Syndrome – Advances on Neuroscience and Drug Treatments

Keynote speakers:

Professor Doctor Alberto Costa – Doctor, Reseracher, Neuroscientist – Colorado, US

Professor Doctor Stevens Kastrup Rehen – Biomedicine, Nueroscientist, former Researcher In University of California in San Diego and Scripps Research Institute (S) – Rio de Janeiro, Brazil

Scientific Coordination

Professor Doctor Zan Mustacchi – Genetics and Pediatrics – São Paulo, Brazil

Programme:

20/3 – 7 pm

Official opening followed by cocktail

21/3 – 8:30 am

Introduction – Promising Therapeutica Perspectives for Down Syndrome: Resilience, Empowerment*, Pharmacogenomics and Nutregenomics

* – Process through which the person herself chooses or take decisions and assumes consequences

Prof. Dr.Zan Mustacchi

9 am

Conference – Down Syndrome: Neuroscience and Evaluation of chromossomal alterations in Central Nervous System

Prof. Dr. Stevens Kastrup Rehen

President: Prof. Dr. Jose Hugo de Lins Pessoa (President of Pediatrics Society of Sao Paulo)

10:45am

Conference – The Dawning of Translational** Research and Potential Theurapetical Approaches for Down Syndrome

** – approximation of basic science to clinical application

Prof. Dr. Alberto Costa

President: Prof. Dr. Clovis Francisco Constantino (President of Bioethics Department of Brazilian Pediatrics Society)

*** aproximação da ciência básica da aplicação clínica

12 am

Questions and Answers

Promotion: Secretary of State of the Rights of Persons with Disability -SP and CEPEC-SP

Support: São Paulo Pediatrics Society, University Mogi das Cruzes, Aprendendo Down – Itabuna/BA, Brazilian Federation of Down Syndrome Associations(FBASD), MetaSocial Institute, VolunteerAssociation of Darcy Vargas Hospital, Down SyndromeGroup, APAE SP, Darcy Vargas Hospital, Carpe Diem and De la pra Ca Group, ADID and Let´s go Together Group, Plus One Association, Discussion Groups Happy Down, Down Syndrome and Inclusion

Sponsors: Secretary of State of the Rights of Persons with Disability -SP, L’ALIANXA Travel NetWork Brasil, BOIRON®, Aprendendo Down – Itabuna/BA, CEPEC-SP

Sorocaba, SP
9) 14 a 21/03 – Photo Exhibition – “A look about inclusion”, by Laura Daniel – Esplanada Shopping and Municipal Chamber of Sorocaba

10) 18/3 – 11:30 am – Session at Municipal Chamber of Sorocaba – In honour of adults with Down syndrome who work at the town and businessmen and partners that help make persons with Down syndrome live better lives.

11) 21/3 – Presentation of actions of Felicidade Down group and cocktail – Ipanema Club

Campinas – SP
12) 21/3 – 12 am to 6 pm

Inclusive Chat – “I have a child with Down syndrome”, exhibition by Chico Fransé, music and get together

Realização: Fundação Síndrome de Down

BA
Itabuna – BA

13) 24/2 and 3/3 – Inclusive Chat with parents – screening of “Happy Feet”

14) 17/3 – Olinto Leone Square – Distribution of educational leaflets

Itapetininga – BA

15) 19 and 20/3 – Lectures: Inclusion and the Right to Belong

Feira de Santana – BA

16) 20/3 – 8:30 am to 12:30am – City Hall Parking Lot

Photo Exhibition, inclusive cultural presentations by schools and organizations, informational posters about Down syndrome

CE
Fortaleza, CE

17) 21/3 – 10 am

Walk on the beach – Inclusion, Let´s Make it Happen – Artistic and Cultural Presentations – Universo Down

MA
São Luis – MA

18) 16/3 – Sao Luis Shopping Mall – Social Inclusion: Let´s make it happen!

10 am to 8 pm: Distribution of folders and orientation about Down syndrome

6 pm to 8 pm: Performance of Dance Group Semear (dancers with Down syndrome)

19) 19/3 – UNICEUMA – University Center of Maranhao

Educational Lectures – Awareness and Sensibilization of abilities of persons with Down syndrome – Dorlene Caldas

Education and Inclusion – Dr. Paulo Avelar

DEBATE

Dance performance – Semear Group

Promotion: Association of families and Friends of Down syndrome persons of Maranhao – AFADMA

RS
Porto Alegre – RS

20) 5/3 – 16:30 pm – Lecture about Down Syndrome – FAQI – Porto Alegre – RS

“Strategies and combined therapies for children with Down syndrome” – Ivalda Gomes

Collaboration: CEANS, Inclusive – Inclusion and Citizenship and QI College, AFAD Porto Alegre, AFAD Novo Hamburgo and AFAD Cachoeira do Sul

Novo Hamburgo -RS

21) 20/3 – Event supported by Rotary Club – Awareness and distribution of informative leaflets

22) 21/3 – Lunch open to community with parents from Down Syndrome Association – Debate about inclusive education, legislation

23) 23/3 – Opportunity to speak out at Municipal Council

24) 9/4 – II Presentation about Regular schools X Specialized Education Services to teachers

25) 23/4 – III Presentation about Regular schools X Specialized Education Services to administration authorities

Promotion: AFAD-21

General Coordination – FBASD
http://fbasd.blogspot.com/

 
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segunda-feira, 8 de março de 2010
INCLUSÃO SOCIAL:VAMOS FAZER ACONTECER! DIA INTERNACIONAL DA SÍNDROME DE DOWN 2010:AGENDA
 

http://fbasd.blogspot.com
Contato:Claudia Grabois-presidente
presidentefbasd@gmail.com

EVENTOS
DF
Brasilia-DF-FBASD
1) 6/4 – 10h – Câmara dos Deputados – Sessão solene na Câmara Federal – INCLUSÃO SOCIAL:VAMOS FAZER ACONTECER!

Deputado Federal Paulo Pimenta e Federação Brasileira das Associações de Síndrome de Down

Brasilia-DF
1) 15 a 26/3 – Senado Federal – Exposição “Pintou a Síndrome do Respeito” – Instituto Olga Kos de Inclusão Social, cerca de 40 artistas com síndrome de Down, vão expor seus trabalhos numa de 15 a 26 no Espaço Senado e Ivadro Cunha Lima, corredor que divide a Câmara do Senado.

2) 23/3 – Assembléia Legislativa do Distrito Federal
Sessão Solene em homenagem ao dia Internacional da síndrome de Down – Iniciativa – Deputada Erika Kokay

RJ
Rio de Janeiro – RJ
4) 21/3 – 9:30 h – Praia de Ipanema-Saída Arpoador
Caminhada na orla-Inclusão Social: Vamos Fazer Acontecer!

5) 23/3 – 14 h – Sessão Solene na Câmara Municipal – Inclusão Social: Vamos fazer Acontecer – Vereador Tio Carlos, FBASD e Instituto Meta Social

6) 24/3 – 14 h – UERJ-Rav 112 – Fórum de Educação Inclusiva em homenagem ao Dia Internacional
Duque de Caxias – RJ

7) 23/3 – Evento na Secretaria Muncipal de Duque de Caxias em homenagem a FBASD
às 10hs.

SP
São Paulo-SP
8 – 20 e 21/3 – SIMPÓSIO INTERNACIONAL SOBRE SÍNDROME DE DOWN – Avanços da Neurociência e Tratamentos Medicamentosos
Prof. Dr. Alberto Costa (Médico – Pesquisador – Neurocientista – Colorado/EUA) e Prof. Dr. Stevens Kastrup Rehen (Biomédico – Neurocientista UFRJ – Pesquisador da Universidade da Califórnia em San Diego (2003) e do Instituto de Pesquisa Scripps dos Estados Unidos (2005)
Coordenação Científica:
Prof. Dr. Zan Mustacchi (Médico Geneticista – Pediatra)
- “O Surgimento de Promissoras Perspectivas Terapêuticas para a Síndrome de Down: Resiliência, Empoderamento*, Farmacogenômica e Nutrigenômica”. Prof. Dr. Zan Mustacchi
*processo pelo qual a própria pessoa escolhe ou toma decisões e assume as conseqüências

REALIZAÇÃO: Secretaria de Estado dos Direitos da Pessoa com Deficiência, Centro de Estudos e Pesquisas Clínicas de São Paulo – CEPEC-SP.
APOIO: Sociedade de Pediatria de São Paulo (SPSP), Universidade Mogi das Cruzes (UMC),Federação Brasileira das Associações de Síndrome de Down (FBASD), Núcleo Aprendendo Down – Itabuna/BA, Instituto Meta Social, Associação das Voluntárias do Hospital Infantil Darcy Vargas (HIDV) Grupo de Síndrome de Down, APAE de São Paulo, Hospital Infantil Darcy Vargas (HIDV), Carpe Diem e grupo De Lá pra Cá, ADID e grupo Vamos Juntos, Associação Mais Um, Grupos de Discussão: Happy Down, Síndrome de Down e Inclusão
PATROCÍNIO: Secretaria de Estado dos Direitos da Pessoa com Deficiência, L’ALIANXA Travel NetWork Brasil, BOIRON®, Núcleo Aprendendo Down – Itabuna/BA, CEPEC-SP

Sorocaba – SP
9) 14 a 21/3 – das 10 h às 22 h – Esplanada Shopping – Av. Gisele Constantino, 1870 – Sorocaba – SP
Exposição de Fotos “Um olhar sobre a Inclusão” – Fotógrafa Laura Daniel – 100 fotos mostrando crianças e jovens com Síndrome de Down de Sorocaba e região em suas mais variadas atividades.
Realização do “Felicidade Down” e apoio do McDonald’s de Sorocaba

10) 18/3 – 11:30 h – Sessão na Câmara Municipal de Sorocaba
Vereador José Francisco Martinez – Homenagem a todos jovens com Síndrome de Down que trabalham em Sorocaba, aos empresários e parceiros que juntos buscam a melhoria de vida das pessoas com Síndrome de Down de Sorocaba e região.

11) 21/3 – 16:00 h – Ipanema Clube de Sorocaba
Painel das ações realizadas pelo “Felicidade Down” nos últimos meses, visando à inclusão social, apresentações de jovens e adolescentes com Síndrome de Down.

BA
Itabuna – BA
12) 24/2 – Papo inclusivo com as mães e filme “Happy Feet, o Pinguim.

13) 17/3 – Praça Olinto Leone – Distribuição de panfletos educativos.
Itapetininga – BA

14) 19 e 20/3 – Evento SER INCLUSÃO
Inclusão Social:Vamos Fazer Acontecer!

CE
Fortaleza – CE
15) 18/3 – 14:30h Assembléia Legislativa do Estado do Ceará
Audiência Pública VAMOS FAZER ACONTECER! – “SITUAÇÃO DE CRIANÇAS CEARENSES COM SÍNDROME DE DOWN NO ESTADO DO CEARÁ”

MA
São Luis – MA
16) 16/3 – São Luis Shopping – INCLUSÃO SOCIAL: VAMOS FAZER ACONTECER
10h ás 20h: Distribuições de folder e orientações sobre a Síndrome de Down (equipe multidisciplinar – AFADMA).

18h ás 20h: Apresentação de Dança –GRUPO SEMEAR(jovens comSíndrome de Down), ritmos reggae, romântico, rip rop, forró.

17) 19/3 – UNICEUMA – CENTRO UNIVERSITÁRIO DO MARANHÃO – Auditório Josué Montello
PALESTRAS EDUCATIVAS:Conscientização e Sensibilização das Habilidades e Aptidões das pessoas com Síndrome de Down – Fga Dorlene Caldas – Fundadora e presidente da Associação dos familiares e amigos dos Down do Maranhão – AFADMA
Educação e Inclusão Escolar- Dr. Paulo Avelar – Promotor de Justiça de Defesa da Educação-PIED
DEBATE
APRESENTAÇÃO DE DANÇA “GRUPO SEMEAR”-jovens com Síndrome de Down, ritmos: reggae, romântico, rip rop, forró.
Unidade Renascença – Rua Josué Montello, nº1, Renascença II, São Luís – MA.
Realização: ASSOCIAÇÃO DOS FAMILIARES E AMIGOS DOS DOWN DO MARANHÃO – AFADMA

RS
Porto Alegre – RS

18) 5/3 – 18:30h – PALESTRA SOBRE SÍNDROME DE DOWN – FAQI (Av. Júlio de Castilhos, 435. Centro). Porto Alegre – RS
“Estratégias de terapias combinadas para crianças com síndrome de Down” – IVALDA GOMES
Colaboração: Centro de Estudos e Atendimento Neurológico da Saúde (CEANS), Inclusive – Inclusão e Cidadania, Escolas e Faculdades QI, AFAD Porto Alegre, AFAD Novo Hamburgo e AFAD Cachoeira do Sul
Novo Hamburgo -RS

19) 20/3 – Evento com apoio de Clube Rotário para sensibilização da sociedade em geral – Distribuição de folders e panfletos.

20) 21/3 – Almoço comemorativo com os pais da Associação e aberto à comunidade – Debates sobre como estão as escolas da região e assuntos pertinentes como interdição,legislação.

21) 23/3 – Tribuna livre na Câmara de Vereadores de Novo Hamburgo com a participação dos pais.

22) 9/4 – II COLÓQUIO sobre Escola Regular x Atendimento Educacional Especializado para professores da Rede Regular de Ensino

23) 23/4 – III COLÓQUIO sobre Escola Regular x Atendimento Educacional Especializado para professores da Rede Regular de Ensino para gestores de toda região – Realização: AFAD-21
COORDENAÇÃO GERAL – FBASD

 
 
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