About us

The World Down Syndrome Day website and associated activities are coordinated by Down Syndrome International in collaboration with the National Down Syndrome Society and the Down’s Syndrome Association.​

Down Syndrome International

Down Syndrome International is the global network of people with Down syndrome and their families. ​

We speak up and take action, together as a network, for the human rights of all people with Down syndrome around the world.

Everything that we do is led by people with Down syndrome and their families in their communities.

People with Down syndrome have the right to have a say in all decisions that affect them, including on laws and policies.

Our Goal is to make sure people with Down syndrome and their families around the world can do this.

The National Down Syndrome Society 

Founded in 1979, the National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

NDSS engages grassroots advocates at the federal, state, and local levels and creates resources to support individuals with Down syndrome, their families, and caregivers across the lifespan on topics including education, employment, health and wellness, and aging.

NDSS founded the National Buddy Walk® Program in 1995 and hosts community engagement events throughout the country including the New York City Buddy Walk® and Times Square Video, the NDSS Adult Summit, and the Down Syndrome Advocacy Conference.

NDSS website

Down’s Syndrome Association

The Down’s Syndrome Association (DSA) is a national organisation covering England, Wales and Northern Ireland, committed to improving quality of life for people who have Down’s syndrome, promoting their right to be included on a full and equal basis with others.

DSA website