Speak up with us on 21 March.

Our global community

The World Down Syndrome Day website and associated activities are coordinated by Down Syndrome International, the global network of people with Down syndrome and their families.

The DSi Network includes 150+ organisation members from all world regions, representing the Down syndrome community in their country.​
We speak up and take action, together as a network, for the human rights of all people with Down syndrome.

All around the world, Down syndrome organisations are preparing to take action on 21 March. We encourage you to connect with the Down syndrome community in your part of the world and learn how you can support local action.
Search for a network member near you:

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Europe

Our global community at the United Nations

Each year, Down Syndrome International hosts the World Down Syndrome Day Conference at the United Nations Headquarters in New York and a series of events at the United Nations in Geneva.

Find out how you can take part in these events:

Events and activities

Down Syndrome International

Down Syndrome International is the global network of people with Down syndrome and their families. ​ We speak up and take action, together as a network, for the human rights of all people with Down syndrome around the world. Everything that we do is led by people with Down syndrome and their families in their communities. People with Down syndrome have the right to have a say in all decisions that affect them, including on laws and policies. Our Goal is to make sure people with Down syndrome and their families around the world can do this.

DSi website

The National Down Syndrome Society 

Founded in 1979, the National Down Syndrome Society (NDSS) empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

NDSS engages grassroots advocates at the federal, state, and local levels and creates resources to support individuals with Down syndrome, their families, and caregivers across the lifespan on topics including education, employment, health and wellness, and aging.

NDSS founded the National Buddy Walk® Program in 1995 and hosts community engagement events throughout the country including the New York City Buddy Walk® and Times Square Video, the NDSS Adult Summit, and the Down Syndrome Advocacy Conference.

NDSS website

Down’s Syndrome Association

The Down’s Syndrome Association (DSA) is a national organisation covering England, Wales and Northern Ireland, committed to improving quality of life for people who have Down’s syndrome, promoting their right to be included on a full and equal basis with others.

DSA website

How you can help.

When the global Down syndrome community speaks up together, we are much louder!

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Make your voice count!

Our resource hub is packed full of ideas and resources to help you make a difference on World Down Syndrome Day:

Resource hub

What to say

The important messages that we need to share and the language to use in your messages.

About Down syndrome

Helpful information about the condition to help you better understand.

And how to say it

A social media toolkit with graphics and hashtag guides.

Contact us.

Contact form

7-9 Chapel Street, Exmouth, Devon, EX8 1HR, United Kingdom

+44 (0)1395 493108