Ted from the United Kingdom
When Ted was born in 2016 the sadness and pity from healthcare professionals were overwhelming.
He was a postnatal diagnosis and it was a total surprise to all of us.
The days and weeks following his birth were dark times for me, if the midwife was sorry, if I needed a side room, if the prodding and poking were as serious as it seemed I was in for a terrible time right?
Oh how I wish I could go back in time, to tell that frightened new mum that life was exactly as it should be.
No child comes with any guarantees all children are unique and whilst we do have some tough days, I have challenges with my typically developing child too.
Normalising Down’s syndrome, breaking away from the stigma and out dates perceptions and setting expectations on society will drive the change we need.
Ted is now 6 he has few words but is an incredible communicator, he attends the same mainstream primary school as his older brother, he is learning to swim, he has friends and his life matters.
We are raising awareness to enable Ted to have choices, the same choices as you or I.
We are fighting for an inclusive world.
Even in 2016, we faced incredible bias this has to change.
Success & happiness are more than your job title or bank balance.
We will continue to share Ted & raise awareness.
Our family is the same as yours, our youngest son just happens to have an extra chromosome.
The best way to promote awareness of Down syndrome is for people with Down syndrome to share their own stories in their own words.
If you have a message that you would like to share with the world, please click here: What would you like to say?